Advice for partners

Being the partner of someone with endometriosis can sometimes be overwhelming and confusing . Feelings of helplessness and worry are common, and you may have many questions. “What is endometriosis?”, “What should I look for?”, “What can I do?’’, “How do I talk to them about it?” 

Often you may be left wondering: 
“How can I help?”
  
Here is a simple approach to support your partner….

Learn

The more information you are equipped with, the better understanding you will have of your partner’s condition. Learn about endometriosis, what it is, the symptoms, and treatments. You can check out this fact sheet or this video to start learning. Also check out the Myths and Facts about Endometriosis. Ask your partner if they would like you to attend their medical appointments and be a second set of ears for them or take notes. Appointments can be overwhelming so by being there and listening you may help your partner recall information they might’ve forgotten.  Work through EndoZone’s symptom checker and health report together so you can prepare for your partner’s doctor appointment. Ask your partner what helps them with their pain (i.e some use heat packs, others prefer ice packs. Some like laying down whilst others like going on walks). Learn about the different self-management strategies here and share them with your partner. 

Listen

Sometimes just listening to your partner and validating their feelings can help. 
By listening you are helping them. You are showing them emotional support. 
Sometimes you may need a little extra support and someone to listen to you or your partner’s experience. A counsellor or psychologist may be useful - you can be referred by a GP or you can access one via phone or online. 

Love 

It can be hard for your partner to feel up to doing activities, sometimes they may need gentle encouragement. Activities or hobbies can help your partner feel more like themselves and depending on the activity may help them manage their pain.
If you notice they are too tired to do some of the household tasks, offer to do the shopping and chores. If your partner is in pain, offer them a heat pack, hold them and allow them time to rest. Some of these acts of love may seem small but their impacts are immeasurable. 

It’s important to be aware that the fatigue and discomfort from endometriosis can make physical intimacy difficult for many people. We have more information to support you here.