Skip to main content Researchers from the University of Tasmania are exploring how people living with endometriosis perceive, accept, and cope with their symptoms, as well as the impact of endometriosis on self and body compassion, health-related quality of life (HRQoL), and psychological well-being. Participants will be asked about different physical and emotional symptoms associated with endometriosis and how their unique symptom profile influences their overall well-being.
Researchers also want to understand the level of control people living with endometriosis feel they have over the management of their symptoms as well as what they would like medical and allied health providers to understand about their experience of endometriosis.
Who can participate?
- Any Australian woman or gender-diverse person, presumed female at birth,
- Aged 18 years or older,
- Experiencing symptoms of endometriosis.
What does the research involve?
The first part involves completing an anonymous online survey. After completing the online survey, participants will be given an opportunity to indicate whether they would like to talk to one of the researchers in more detail in a voluntary interview. The interview will ask questions about endometriosis-related experiences including how much control the person feels they have over their endometriosis, whether there are things that they wished people close to them understood about endometriosis, and whether there are things that they wished medical and allied health providers understood about their experience of endometriosis diagnosis and management.
How do I get involved?
Please click on the link below to complete an anonymous online survey.