There is still much to learn about endometriosis and we need your help
If you are experiencing symptoms or have endometriosis then you can help researchers learn more about the condition by participating in the research studies below. If you are a researcher, you can help inform the endo community by publishing the findings from your latest research or advertise for participants for your upcoming studies. We can work together to improve outcomes for people with endometriosis.
Help us learn by taking part in endo studies
NECST Network
NECST is a research network made up of clinicians, healthcare providers, scientists, patients, and consumer representatives who are determined to fill the gaps in endometriosis research to improve patient outcomes and our understanding of this condition.
The Julia Argyrou Endometriosis Centre at Epworth
The overall vision of the Julia Argyrou Endometriosis Centre at Epworth is to find a cure for endometriosis and to reduce its personal and societal impact by prevention, early diagnosis and patient centred / holistic treatment. To be eligible for participation in a research project at the Julia Argyrou Endometriosis Centre at Epworth you must be a patient at Epworth HealthCare, Victoria.
IMAGENDO: Non-invasive endometriosis diagnosis using machine learning
IMAGENDO, led by the University of Adelaide, is developing a new, accessible, cost-effective, less-invasive diagnostic tool for endometriosis. Using specialist endometriosis ultrasound and endometriosis MRI scans and Artificial Intelligence, we hope to develop an algorithm to help detect endometriosis.
LongSTEPPP - Teenagers study
We believe that periods shouldn't ruin your life. Murdoch Children’s Research Institute is trying to find out how to best care for young people experiencing period or pelvic pain and endometriosis.
Recovery following laparoscopy
This study conducted by the GRACE unit at UNSW, investigates recovery experiences and patient outcomes following laparoscopic surgery.
A New IUD for Difficult to Manage Pain
Alyra Biotech has developed a new intrauterine device (Alyra Device) to help people with difficult-to-manage period and pelvic pain, including people with endometriosis, and is seeking participants for clinical trials.
Endometriosis: Diagnosis, Innovation and Treatment
The Endometriosis: Diagnosis, Innovation and Treatment (En-DIT) group are a leading Australian Endometriosis Research group in Melbourne, comprising several dedicated teams of researchers, scientists, clinicians and consumers.
Experiences of living with gynaecological conditions
Our team would like to understand how living with gynaecological conditions impact on a person’s overall level of emotional and physical wellbeing.
Patient perspectives, experiences and preferences of IUDs
Our research aims to help understand the usage, benefits and concerns of individuals who have or have considered using an IUD to inform future IUD design.
Endo Barostat Study
This pilot study conducted by researchers at Monash University, is trying to work out the cause of gastrointestinal symptoms in Melbourne-based women with endometriosis.
MRI-Endo Study: adolescents & young adults
This study will focus on the use of Magnetic Resonance Imaging (MRI), as a non-invasive method of detection of endometriosis. This study aims to assess the use of MRI as a diagnostic method for endometriosis in Melbourne-based adolescents and young adults.
Financial burden & language barriers for people with endometriosis
This study aims to understand your experiences of living with endometriosis, especially the financial burden of endometriosis and the potential language barriers to the delivery of endometriosis information by healthcare providers.
EndoCannED trial – Deakin University and NICM Health Research Institute
Deakin researchers, together with NICM Health Research Institute, are seeking participants to be involved in a clinical trial examining the safety, tolerability and acceptability of two different medicinal cannabis interventions in people with endometriosis.
Illness Perception, Acceptance, and Compassion in Endometriosis
This study aims to explore how people living with endometriosis perceive, accept, and cope with their symptoms, as well as the impact of endometriosis on self and body compassion, health-related quality of life (HRQoL), and psychological wellbeing.
Endometriosis Pain Course Research Trial
Researchers at Macquarie University are conducting a clinical trial to investigate the helpfulness of The Endometriosis Pain Course an online psychological pain management program.
myPATH: a co-designed digitally-enabled health solution
Researchers at Curtin University understand that each young person’s experience of pain and their care needs are unique. There is no ‘one size fits all’ for effective, quality musculoskeletal pain care. Young people have told us that they want care that is meaningful, personalised and accessible.
Psychological distress in infertile women
Living with infertility can be physically and emotionally challenging. Researchers at Macquarie University are interested in understanding what factors might contribute to why some people experience more difficulties than others and whether adopting a kind attitude towards yourself can help protect and support you during this period.