There is still much to learn about endometriosis and we need your help

If you are experiencing symptoms or have endometriosis then you can help researchers learn more about the condition by participating in the research studies below. If you are a researcher, you can help inform the endo community by publishing the findings from your latest research or advertise for participants for your upcoming studies. We can work together to improve outcomes for people with endometriosis.

Help us learn by taking part in endo studies

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NECST Network

NECST is a research network made up of clinicians, healthcare providers, scientists, patients, and consumer representatives who are determined to fill the gaps in endometriosis research to improve patient outcomes and our understanding of this condition.

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Epworth and Julia Argyou

The Julia Argyrou Endometriosis Centre at Epworth

The overall vision of the Julia Argyrou Endometriosis Centre at Epworth is to find a cure for endometriosis and to reduce its personal and societal impact by prevention, early diagnosis and patient centred / holistic treatment. To be eligible for participation in a research project at the Julia Argyrou Endometriosis Centre at Epworth you must be a patient at Epworth HealthCare, Victoria.

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Machine Learning Endo Study by Imagendo

IMAGENDO: Non-invasive endometriosis diagnosis using machine learning

IMAGENDO, led by the University of Adelaide, is developing a new, accessible, cost-effective, less-invasive diagnostic tool for endometriosis. Using specialist endometriosis ultrasound and endometriosis MRI scans and Artificial Intelligence, we hope to develop an algorithm to help detect endometriosis. 

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LongSTEPPP - Teenagers study

We believe that periods shouldn't ruin your life. Murdoch Children’s Research Institute is trying to find out how to best care for young people experiencing period or pelvic pain and endometriosis.

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IUD

A New IUD for Difficult to Manage Pain

Alyra Biotech has developed a new intrauterine device (Alyra Device) to help people with difficult-to-manage period and pelvic pain, including people with endometriosis, and is seeking participants for clinical trials. 

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A team of researchers, clincians from Melbourne investigating endometriosis.

Endometriosis: Diagnosis, Innovation and Treatment

The Endometriosis: Diagnosis, Innovation and Treatment (En-DIT) group are a leading Australian Endometriosis Research group in Melbourne, comprising several dedicated teams of researchers, scientists, clinicians and consumers.

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Endo Barostat Study

This pilot study conducted by researchers at Monash University, is trying to work out the cause of gastrointestinal symptoms in Melbourne-based women with endometriosis.

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MRI-Endo Study: adolescents & young adults

This study will focus on the use of Magnetic Resonance Imaging (MRI), as a non-invasive method of detection of endometriosis.  This study aims to assess the use of MRI as a diagnostic method for endometriosis in Melbourne-based adolescents and young adults.

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Endometriosis Pain Course Research Trial

Researchers at Macquarie University are conducting a clinical trial to investigate the helpfulness of The Endometriosis Pain Course an online psychological pain management program.

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Psychological distress in infertile women

Living with infertility can be physically and emotionally challenging. Researchers at Macquarie University are interested in understanding what factors might contribute to why some people experience more difficulties than others and whether adopting a kind attitude towards yourself can help protect and support you during this period.

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The EndoCann Trial - Medicinal Cannabis for Endometriosis

Researchers from NICM Health Research Institute are seeking participants to be involved in a clinical trial investigating the efficacy and safety of two different medicinal cannabis products in people with endometriosis. The study will explore whether medicinal cannabis helps with pelvic pain severity, fatigue, quality of life, and mental wellbeing

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Pelvic pain and identity

Researchers at the University of Buckingham are exploring whether people who live with chronic pelvic pain experience changes to their identity and whether this is associated with psychological factors. It also explores the degree to which pain interferes with their daily lives. 

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The Role of Nurses in Endometriosis-Related Care

This project focuses on the role of nurses in endometriosis-related patient care. Researchers would like to understand the skills or knowledge a specialist endometriosis nurse may need and people’s experiences of providing or receiving trauma informed care for endometriosis.

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Molecular characterisation of cell-free circulating DNA for the diagnosis of gynaecological diseases

Researchers at UNSW are investigating potential blood-based biomarkers for the detection of endometriosis and are seeking volunteers who can donate blood samples for use in endometriosis research studies.

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Information needs of CALD individuals with endometriosis

Researchers at La Trobe University are exploring the information needs of culturally and linguistically diverse (CALD) individuals with endometriosis. This study can help guide future development of endometriosis-related information resources to be more inclusive and culturally appropriate. 

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Resistance Training and Endometriosis

Researchers from Victoria University are exploring how Australian women with endometriosis engage with resistance training, and impact it may have on their symptoms to help guide better support and exercise recommendations. 

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Medical Cannabis for Endometriosis Gut Study

Researchers at Western Sydney University are exploring whether medical cannabis can help ease endometriosis-related GI symptoms.

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CoDeEndo: Online Supportive Care for Endometriosis

Researchers at Deakin University are exploring whether CoDeEndo (an online modular supportive care program) is effective in improving outcomes for people diagnosed with endometriosis.

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ENDometriosis and CArdioMetabolic disease risk (ENDCAM Awareness Study)

This study aims to assess the current knowledge level of clinicians and patients about the important link between endometriosis and cardiometabolic health.

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Period pain from endo

Microvascular Modulation in Endometriosis (MMEND) Study

Researchers at the Curtin Medical Research Institute are investigating whether two nutraceuticals can help reduce endometriosis-associated pain to improve quality of life.

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Eating, Mindset, Physical & Overall Wellness with Endometriosis

The EMPOWER study is exploring what people with endometriosis eat, the nutrition support they receive, and how this relates to symptoms and wellbeing in the first year after diagnosis.

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Understanding Adolescent Opinions on TVUS for diagnosis of endometriosis

This research study aims to improve how endometriosis is identified and diagnosed in adolescents.

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Exercise at home

Determining the exercise dose required to reduce endometriosis symptoms

The aim of this study is to examine the effects of exercise dose on markers of symptom severity in regional, rural and remote women living with endometriosis.

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Period symptom tracker

Cycles for Science

This study explores the physical, social and emotional factors that may influence a person’s decision and comfort to participate in menstrual fluid collection research studies.

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Young people with endometriosis and parents in Australian primary care

This study explores the needs and experiences of young people (aged 15 to 24 years) with endometriosis (suspected or confirmed), and parents, when accessing Australian primary care for endometriosis-related symptoms.

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ENDO IMPACT: exploring implementation barriers, practice support needs, and care pathways in nutrition care for endometriosis

This study investigates how healthcare practitioners provide nutrition support to people living with endometriosis.

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