There is still much to learn about endometriosis and we need your help

If you are experiencing symptoms or have endometriosis then you can help researchers learn more about the condition by participating in the research studies below. If you are a researcher, you can help inform the endo community by publishing the findings from your latest research or advertise for participants for your upcoming studies. We can work together to improve outcomes for people with endometriosis.

Help us learn by taking part in endo studies

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NECST Network

NECST is a research network made up of clinicians, healthcare providers, scientists, patients, and consumer representatives who are determined to fill the gaps in endometriosis research to improve patient outcomes and our understanding of this condition.

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Epworth and Julia Argyou

The Julia Argyrou Endometriosis Centre at Epworth

The overall vision of the Julia Argyrou Endometriosis Centre at Epworth is to find a cure for endometriosis and to reduce its personal and societal impact by prevention, early diagnosis and patient centred / holistic treatment. To be eligible for participation in a research project at the Julia Argyrou Endometriosis Centre at Epworth you must be a patient at Epworth HealthCare, Victoria.

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Machine Learning Endo Study by Imagendo

IMAGENDO: Non-invasive endometriosis diagnosis using machine learning

IMAGENDO, led by the University of Adelaide, is developing a new, accessible, cost-effective, less-invasive diagnostic tool for endometriosis. Using specialist endometriosis ultrasound and endometriosis MRI scans and Artificial Intelligence, we hope to develop an algorithm to help detect endometriosis. 

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LongSTEPPP - Teenagers study

We believe that periods shouldn't ruin your life. Murdoch Children’s Research Institute is trying to find out how to best care for young people experiencing period or pelvic pain and endometriosis.

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IUD

A New IUD for Difficult to Manage Pain

Alyra Biotech has developed a new intrauterine device (Alyra Device) to help people with difficult-to-manage period and pelvic pain, including people with endometriosis, and is seeking participants for clinical trials. 

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A team of researchers, clincians from Melbourne investigating endometriosis.

Endometriosis: Diagnosis, Innovation and Treatment

The Endometriosis: Diagnosis, Innovation and Treatment (En-DIT) group are a leading Australian Endometriosis Research group in Melbourne, comprising several dedicated teams of researchers, scientists, clinicians and consumers.

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Experiences of living with gynaecological conditions

Our team would like to understand how living with gynaecological conditions impact on a person’s overall level of emotional and physical wellbeing.

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IUD

Patient perspectives, experiences and preferences of IUDs

Our research aims to help understand the usage, benefits and concerns of individuals who have or have considered using an IUD to inform future IUD design.

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Endo Barostat Study

This pilot study conducted by researchers at Monash University, is trying to work out the cause of gastrointestinal symptoms in Melbourne-based women with endometriosis.

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MRI-Endo Study: adolescents & young adults

This study will focus on the use of Magnetic Resonance Imaging (MRI), as a non-invasive method of detection of endometriosis.  This study aims to assess the use of MRI as a diagnostic method for endometriosis in Melbourne-based adolescents and young adults.

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Financial burden & language barriers for people with endometriosis

This study aims to understand your experiences of living with endometriosis, especially the financial burden of endometriosis and the potential language barriers to the delivery of endometriosis information by healthcare providers.

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EndoCannED trial – Deakin University and NICM Health Research Institute

Deakin researchers, together with NICM Health Research Institute, are seeking participants to be involved in a clinical trial examining the safety, tolerability and acceptability of two different medicinal cannabis interventions in people with endometriosis. 

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Illness Perception, Acceptance, and Compassion in Endometriosis

This study aims to explore how people living with endometriosis perceive, accept, and cope with their symptoms, as well as the impact of endometriosis on self and body compassion, health-related quality of life (HRQoL), and psychological wellbeing.

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Endometriosis Pain Course Research Trial

Researchers at Macquarie University are conducting a clinical trial to investigate the helpfulness of The Endometriosis Pain Course an online psychological pain management program.

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Psychological distress in infertile women

Living with infertility can be physically and emotionally challenging. Researchers at Macquarie University are interested in understanding what factors might contribute to why some people experience more difficulties than others and whether adopting a kind attitude towards yourself can help protect and support you during this period.

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Exploring Endometriosis and Body Image

Researchers at University of Sunshine Coast are conducting a research study aimed at discovering how compassion and appreciation-based constructs can improve body image in females with and without endometriosis. Women, and especially those with endometriosis, typically have body image concerns. This project aims to contribute to the understanding of improving body image in those with and without endometriosis.

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Nutrition Stories of Women Living with Chronic Pelvic Pain

Researchers from the Hunter New England Local Health District and the University of Newcastle are exploring the experiences of nutrition and chronic pelvic pain in women and those assigned female at birth. The study will help to understand the lived experience of chronic pelvic pain and plan better nutrition interventions.

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The impact of emotion on information processing amongst women with endometriosis

Researchers from RMIT University are examining the impact of emotion on engagement with different types of information among people affected by endometriosis. This study aims to advance important research that will lead to better support and interventions for individuals with endometriosis navigating health information online.

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The EndoCann Trial - Medicinal Cannabis for Endometriosis

Researchers from NICM Health Research Institute are seeking participants to be involved in a clinical trial investigating the efficacy and safety of two different medicinal cannabis products in people with endometriosis. The study will explore whether medicinal cannabis helps with pelvic pain severity, fatigue, quality of life, and mental wellbeing

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Evaluating An Online Acceptance and Commitment Therapy-Based Intervention for People Living with Endometriosis

Researchers at Deakin University are seeking participants who are interested in testing a novel Acceptance and Commitment Therapy (ACT) program, adapted and designed for people living with endometriosis (ACTforEndo). The findings from this study will provide valuable insights into the benefits and usefulness of an online ACT program for individuals with endometriosis

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Exercise experiences in women with Endometriosis and PCOS

Researchers from Flinders University are exploring differences in the healthcare experiences of women with PCOS and endometriosis and those without these conditions. Findings will help to identify opportunities for improvement that can be used by health professionals in the clinical care of PCOS, endometriosis, and women in general

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Pelvic pain and identity

Researchers at the University of Buckingham are exploring whether people who live with chronic pelvic pain experience changes to their identity and whether this is associated with psychological factors. It also explores the degree to which pain interferes with their daily lives. 

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Improving sexual health communication between GPs and people with endometriosis

Endometriosis often impacts sexual wellbeing. General practitioners (GPs) and consumers may find it difficult to talk about sexual symptoms. Researchers from Deakin University are seeking GPs to participate in an acceptability study, which aims to evaluate a newly developed website to help improve communication about endometriosis and sexual health.  

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Decision-making conflict in people recently diagnosed with endometriosis

Researchers at Macquarie University aim to investigate the extent to which people recently diagnosed with endometriosis experience decisional conflict, and to see if factors like treatment cost burden make decisional conflict worse. The results of this study will help in the creation of an online tool to help people choose treatments that best suit them.
  

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The Role of Nurses in Endometriosis-Related Care

This project focuses on the role of nurses in endometriosis-related patient care. Researchers would like to understand the skills or knowledge a specialist endometriosis nurse may need and people’s experiences of providing or receiving trauma informed care for endometriosis.

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The EndoChill Trial: Using breath, meditation, and cold-water immersion to treat endometriosis pain

This pilot study will evaluate a novel, drug-free method to treat endometriosis pain and involves a combination of breathing exercises, meditation, and cold-water immersion in the form of an ice bath.

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Female doctor talking to patient

Molecular characterisation of cell-free circulating DNA for the diagnosis of gynaecological diseases

Researchers at UNSW are investigating potential blood-based biomarkers for the detection of endometriosis and are seeking volunteers who can donate blood samples for use in endometriosis research studies.

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Gaining insights into patient experience in healthcare access and endometriosis diagnosis

Researchers at the University of Adelaide are exploring the best interventions in the Australian healthcare system to improve access to endometriosis diagnosis to compare the experiences of those diagnosed by different methods and socioeconomic backgrounds. 

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Information needs of CALD individuals with endometriosis

Researchers at La Trobe University are exploring the information needs of culturally and linguistically diverse (CALD) individuals with endometriosis. This study can help guide future development of endometriosis-related information resources to be more inclusive and culturally appropriate. 

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Endo consultation with therapy doctor

Randomised e-Hypnotherapy for Chronic Pelvic Pain Study (REST)

Researchers at Deakin University are exploring whether e-Hypnotherapy is effective in improving pain and other biopsychosocial outcomes for people living with chronic pelvic pain.

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