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Stories

Connect with stories from our community

We understand that sharing experiences can make the endo journey easier. Read on to learn from other people's stories.

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Young women listening and smiling
1 year 6 months ago
Work/life balance Personal stories Symptoms Treatments Diagnosis Fertility Supporters

Endo & I

Endo & I

Parents supporting Endo patient
3 years 1 month ago
Work/life balance Personal stories Symptoms Diagnosis Supporters

How I stopped endometriosis defining me

Finding support through family and friends.

Holding hands for infertility test
3 years 1 month ago
Work/life balance Personal stories Symptoms Treatments Diagnosis Self-management Supporters

My endometriosis journey

Living each day with endometriosis.

Man and woman smiling
3 years 1 month ago
Work/life balance Personal stories Symptoms Treatments Diagnosis Fertility Supporters

Endo what?

Learning about endometriosis and treatment options.

Family having picnic
3 years 10 months ago
Work/life balance Fertility Personal stories Supporters

Journey to Parenthood with Endometriosis

A ten-year journey of failed IVF treatments, 9 miscarriages, 2 ectopic pregnancies, and unsuccessful attempts at surrogacy, ending with the unbelievable joy of a gorgeous son through domestic adoption.

Woman looking at medication options for endo
3 years 10 months ago
School/uni Treatments Diagnosis Symptoms Work/life balance Personal stories Fertility Relationships Supporters

Endometriosis from age 12, diagnosed at 23

The story of living with endo from a young age and getting diagnosed in adulthood. 

EndoZone

This project is a collaboration between EndoActive, Endometriosis Australia, Pelvic Pain Foundation of Australia, QENDO, EndometriosisWA, clinicians and researchers at ACT Health, Curtin University, Flinders University, Robinson Research Institute, and The University of Adelaide. This project received grant funding from the Australian Government and Jean Hailes for Women's Health.

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